amyotrophic lateral sclerosis (ALS)

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

Researchers Find ‘Harmful’ ALS Factor Actually Protects Neurons from Inflammation

Attempting to lower a specific protein that is higher in patients with amyotrophic lateral sclerosis (ALS), researchers discovered that the protein does not contribute to the disease as believed. Instead, it protects neurons from rampaging inflammation. The findings, published in the journal Human Molecular Genetics under the title “Genetic ablation of IP3 receptor 2…

For Diseases Like ALS, Research by MIT and Dana-Farber Show How Financial Techniques Could Make Therapies Affordable

New research by MIT Sloan Prof. Andrew W. Lo, Dana-Farber Cancer Institute‘s David Weinstock, M.D., and Vahid Montazerhodjat, an MIT post-doctoral fellow, offers a solution for the excessive costs associated with breakthrough therapies that already exist for certain diseases such as ALS: securitized consumer healthcare loans (HCLs). The research introducing this practical…