ALS News Today Forums › Forums › ALS Progress › New genetic therapy could be a gamechanger for MND and frontotemporal dementia › Reply To: New genetic therapy could be a gamechanger for MND and frontotemporal dementia

  • Steve

    Member
    May 11, 2025 at 5:38 pm

    It can’t come soon enough. I have C9ORF72 version of ALS. Got it from my Mom. She & my bother died relatively quickly (2 years after being diagnosed)..

    The chief scientist of the ALS association t old me that coconut oil crosses the blood brain barrier as ketones. So I’ve been taking a tablespoons a day with my Oatmeal . I was diagnosed in 2019. But had it in 2018.

    So I’m still walking & talking. Which is due in large part to the coconut oil That’s my story.

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