• A brain device to help ALS patients communicate

    Posted by Community Member on July 14, 2026 at 1:00 am

    This recent news article describes a University of Melbourne company that is developing a less invasive brain-computer interface that could one day allow people with impaired speech, including those with ALS, to communicate by attempting to say words.

    Unlike many current brain-computer interface prototypes, which can involve invasive surgery with electrodes implanted inside the skull, Fluent’s low-risk interface is designed to sit beneath the scalp but outside the skull. 

    https://alsnewstoday.com/news/brain-device-one-day-help-people-als-communicate/

    Do you feel this advancement will be helpful for ALS patients? Would you opt to have the surgery required for this device?

    Community Member replied 4 Members · 5 Replies
  • 5 Replies
  • Community Member

    Administrator

    I applaud innovations in this effort to help improve communication. But, having something implanted (even under the skin) makes the cost prohibitive — and this seems to be at the stage of “one patient at a time.”

    I prefer to wait until they have a headset. 😉

  • Community Member

    Member

    I am one of the people that will get it. I am going to have it at the end of the month. I am excited about it. Anything that helps PALS is a win in my book.

    Everyone in the ALS Community should praise companies that focuses on this disease.

    • Community Member

      Administrator

      Stephen-cronin, that is wonderful news! Please keep us apprised of when you get it and your thoughts and experiences with the device.

  • Community Member

    Member

    I’m very excited about the possibility of a device to allow me to speak again! But I’m with you Dagmar, less invasive would be my preference. But, for testing and development purposes, I would love to participate.

    • Community Member

      Member

      I live in Maryland and I am in constant contact with NIH and Johns Hopkins University . They are leaders in brain-electrode interface. Phase one was invasive and required opening the skull and the device was placed directly on the brain. Today the BEI is placed on the scalp with good results. Check with your ALS clinic and your support group.

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