ALS News Today Forums Forums ALS Progress Research Topics Canada Approves New Patent Covering Ibudilast’s Use for ALS Treatment

  • mckenna-baum

    Member
    August 10, 2020 at 11:48 pm

    What is the status of this drug trial in the US?

  • jane-kriskey

    Member
    September 10, 2020 at 7:26 am

    Every time I check the status of drugs I get the same old same on still in trial yadda yadda, Never do I see that you can use the “Right to Try” act and if you do try the drug companies DO NOT have to give it to you. My Daughter’s doctor told her this law was already on the books, under a different name, but our president brought it front and center, but did not take it far enough to include that the drug companies had to give it to you at a cost that is affordable. So you can ask for it and never get it.

  • giselle-vargas

    Member
    September 10, 2020 at 3:15 pm

    When will it actually be available in Canada? We would go to Canada in a heartbeat. I can’t find any news articles on this. Does anyone have any more info on this?

  • david-crellin

    Member
    September 30, 2020 at 10:38 am

    You think it’s bad in the US and Canada? I experience frustration after frustration with the UK system. Platitudes from politicians, but my MP has agreed to an online meeting.
    I gave up presenting evidence to my consultant – he must be used to patients thinking they know better! In my case, I really do believe I know better. Sister and her husband both senior medics; friend of my son director of gene therapy pharma, another friend PhD in neuroscience from Oxford; and old friends from uni days: two medical consultants, and a regional medical director. So my routes to off-label drug therapies are many and various. Watch this space….

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