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I have been going to so many doctors because of having ALS that I haven’t had much time to do anything else. I also recently went to the Emergency Room and then was in the hospital for three days so I haven’t been having a good summer. I hope other pALS have had a better summer than I have had. It would lift my spirits to hear from other pALS about the things they have been doing this summer or places that they visited.
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@Kathy, I am so sorry to hear about your trip to the ER and being hospitalized. I hope others chime in and share their summer stories too!
As for me, I’ve had company all summer! It has been wonderful, but tiring as well. My nephew who just graduated college even came for a week. I was so excited to see him.
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I got to go to the beach with my children and grandchildren the lifeguards rolled me on the beach with the sand wheelchair I also got to go to Summerfest three times which is a live band many people from my town and lots of food trucks and it ends up with fireworksI am very grateful that my children take me
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My husband and 2 Golden Retrievers took an RV trip from Virginia to Colorado and met up with my son and his family. We took a helicopter tour in Durango and a Hummer tour in Moab. I choked at the western dinner/show and needed Heimlich, but the music was good. My DIL took me to the spa for massage.. It made me hurt. We bought marijuana in Colorado but it doesnt agree with me. My husband is a saint to have done this for me because I am literally useless. We got home and sold the RV…LOL.
Then we had family and friends at our house on the lake for 3 weeks. Lots of kids and chaos. Fireworks (my favorie thing) for 3 nights. I got in the kayak once but couldn’t paddle it. I tried a float, can’t support myself for very long.
That’s my summer so far with ALS. Can’t say I’m not trying!! Brave New World for sure.
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After 15 months of waiting, I was diagnosed on May 11th with Sporatic Als. It’s been up and down for me but yesterday I finally got my camera out and had a peaceful early morning visit with the wild birds that come to our feeders. I’ve been a bird watcher for years and met lots of nice people that enjoy their cameras and the birds. To me, it’s a way to share with others how these wonderful tiny creatures can take our minds off of the day to day pressures of having a terminal disease. I am no longer able to walk but just sitting out on our porch, or at a window (I do photograph through the window sometimes), watching the birds try to find a free spot at the seed or sugar water feeders, grabbing worms from the wet grass or bathing in the bird bath can be much more relaxing than sitting in front of a television all day. Later I will search my images from the camera and hopefully find one good picture to share with my friends and neighbors. You’d be amazed at how many interesting stories that you could attach to those photos.
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