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Did you have any good things happen this month?
Living with ALS can sure be a challenge. Every day, there seems to be “one thing after another.” So much so that we can overlook the little things that went right. Let’s cheer each other on and give ourselves some well-deserved kudos.
Tell us one or two good things that happened to you this month. We want to support YOU.
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6 Replies
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A big shout-out to all who participated in the Funny Moments event earlier this month. Thank you for the chuckles!
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I am sorry but I have-lost function to pick up from my right hand that was weaker but now left side hand and arm is also affected within in 4 weeks. Can’t lift myself up from the bed if lying down. From the neck down to lower back no control and tend ro fall back on bed if there is no support under neck to lift ne with a hand.. I requested clinical trial but wasn’t approved.
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Hello Virgo777, I’m sorry to read that you’ve been losing function in your other hand as well as your back and neck. This is the perfect place to share that news with us. Not every month has good things happening in it — and we have to acknowledge the reality of our individual situations.
May I ask if you are seeing a physical therapist for advice on therapeutic movement (aka: exercises) that you can do to help maintain strength in your shoulders and other muscles? Will wearing a neck brace/cushion be of help?
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On June 2 at Chicago Cub Wrigley Field Lou Gehrig day my family was recognized on the field before the game. I was honored to be able to throw out the ceremonial first pitch.
Philip
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Philip,
That’s awesome! I’m so happy you were able to have that experience.
Amanda
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Congrats on the day, the honor, and… the pitch! Thank you for helping raise awareness of ALS <3
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