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    • #16338

      Having ALS causes stress to everyone in the family. Caregivers, pALS and loved ones need to be prepared for constant changes. Roles and responsibilities may change and adapting is essential but can be challenging. When you pALS goes to the doctor, do you go into the appointment also?  Do you discuss future plans and make decisions together or are some topics to difficult to discuss?  How do you continue to encourage your partnership?

    • #16356

      My husband John is my caregiver and he goes in with me to every appointment. I do see my mental health professional privately.
      two sets of eyes and ears are better than one and it helps when we discuss topics post appointment.

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