ALS News Today Forums Forums ALS Progress Research Topics Groups Seek Public Support of Newborn Screening Reauthorization Act

  • Groups Seek Public Support of Newborn Screening Reauthorization Act

    Posted by als-news-today-moderator on August 20, 2019 at 12:56 pm

    Patient groups want members of the public to contact their senators in favor of a bill to extend ad strengthen federal support for newborn screening programs. Read more here.

    Do you support this initiative? Have you reached out to your elected officials about it?

    Dagmar replied 4 years, 7 months ago 2 Members · 1 Reply
  • 1 Reply
  • Dagmar

    Member
    August 22, 2019 at 10:55 am

    It’s unfortunate that ALS is not one of the 30 core conditions in the screening protocol.

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