ALS News Today Community Forums Boosting Our Voices ALS Awareness Month Have you done anything special for ALS Awareness Month?

  • Have you done anything special for ALS Awareness Month?

    Posted by Community Member on May 22, 2026 at 6:56 pm

    We all have a story to tell! Obviously, my story includes ALS, but I’m so much more than my diagnosis.

    I’m a school psychologist and I’ve had an amazing career. Unfortunately, I’m having to go on disability at the end of this school year. I was honored to be featured in a video at this year’s State of Education Address. It was a much bigger event than I realized. I received a standing ovation, and it brought me to tears.

    At times it feels strange to be recognized for having ALS and advocating for our community. Let’s face it, we wouldn’t be in our shoes if we had a choice! I do my best to stay positive. It isn’t always easy as you all know. What a way to bring attention to ALS. I refuse to sink!

    Share your story – ALS related or not.

    https://youtu.be/PlQGdW-MBS8?si=wl1xOCRXECILcsSr

    Community Member replied 1 month, 3 weeks ago 3 Members · 2 Replies
  • 2 Replies
  • Community Member

    Member
    May 23, 2026 at 3:34 pm

    I’m glad you were recognized in that way it is validation for your career success!

  • Community Member

    Administrator
    May 26, 2026 at 11:43 am

    Amanda, I appreciate how you are 24/7 raising awareness of ALS!

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