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Holiday planning and ALS
The holidays are approaching fast! And for me, now is the time to plan how I will be accommodating my ALS while still being able to participate in festivities. If there are holiday meals at restaurants, I will go online to check out accessibility and menu selections. If in a private home, I make sure the host understands my needs and mobility limitations.
What do you do to make sure your holidays go smoothly?
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3 Replies
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I will be interested to read the tips from our forum members. Especially from caregivers, who are already managing so much.
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I recently wrote one of my columns on this topic… I’ll link it here. What other tips do our members have? Any pet peeves?
https://alsnewstoday.com/columns/i-simply-soak-atmosphere-manage-holiday-stress-als/ -
We’ll be “zooming” with friends and family. I’ll make a semi-special meal for myself and G will stick with the Compleat feeding tube food, tonic water, and prune juice, mmmmm, all he can tolerate these days. But we will set the table with wedding-gift plates from all those years before, and a little LED candle. We might have some visitors, but this is the season of head colds and the flu and we definitely do not need that in our home. People seem to understand. I am thinking about hosting a “cocktail party” via zoom for folks to pop in and say hi. No petri dish involved.
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