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How do you deal with feelings of isolation and loneliness?
Cystic Fibrosis columnist, Lara Govendo, recently wrote about the importance of having a community while living with a chronic disease. Check it out here. We who live with ALS certainly relate.
Here’s an excerpt: “That’s why making friends in our communities is crucial to our overall well-being. It’s validating to see others fighting the same rare disease as me. I’ve learned we can’t walk this journey alone, nor are we meant to. And sometimes we just need the extra encouragement of knowing that if someone else can do it, so can we.”
How do you deal with feelings of isolation and loneliness? What do you do to find a sense of community?
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1 Reply
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I have joined several online ALS groups — if I’m feeling lonely or have a question, I log in and join the ongoing discussions.
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