ALS News Today Community Forums Living With ALS How do you manage the summer heat with ALS?

  • How do you manage the summer heat with ALS?

    Posted by Community Member on July 7, 2026 at 1:00 am

    Summertime can bring with it lots of activities… too many perhaps. Plus, it seems that everyone around the world is experiencing extreme heat. Whenever I have to go out, the heat just zaps my energy – even for the next few hours when I’m finally inside again. I’ve noticed my ALS has made my body more sensitive to the heat. 

    How does the summer heat affect you? What do you do for your self-care during these hot summer months?

    Community Member replied 2 Members · 5 Replies
  • 5 Replies
  • Community Member

    Administrator

    I find that even sitting all day in air conditioning, I have to make sure I am hydrated throughout the day.

    Fun tip: it’s so hot here in Arizona that when I’m outside, I always carry a small oven mitt (or hot pad) to protect my hands from hot metal & plastic surfaces like: car door handles, the door frame, dashboard, or auto push pads.

  • Community Member

    Member

    I stay in air conditioning 24/7. Without it, i’d be done because i also have MS whcih I have had for 43 years then I was diagnosed with ALS

    • Community Member

      Administrator

      Yes! Hooray for AC!

  • Community Member

    Administrator

    Just like being in too cold temperatures, my body has become sensitive to extremes. They are predicting 109 F degrees today in our part of Arizona. ……. Definitely a stay indoors with A/C day!
    How is everyone else doing?

  • Community Member

    Member

    I need stay indoors with the heat. i have been doing so for years because besides ALS I also have MS and my body cannot handle the heat. I have gotten used to it over the years because i have had MS for 43 years and then a year and a half ago I was diagnosed with ALS. Lucky me

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