ALS News Today Forums | pALS with the SOD1 mutation on QALSody/Tofersen | Activity https://alsnewstoday.com/forums/groups/pals-with-the-sod1-mutation-on-qalsody-tofersen/ Activity feed for the group, pALS with the SOD1 mutation on QALSody/Tofersen. Sat, 02 May 2026 14:36:43 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 2bd5ba113f344bad087fe4d77c5c1136 MG Community Member posted an update in the group pALS with the SOD1 mutation on QALSody/Tofersen: I was lucky enough to be interviewed about this […] https://alsnewstoday.com/forums/activity/p/26800/ Tue, 28 Apr 2026 11:26:41 -0500 I was lucky enough to be interviewed about this experience. UHealth research may expand benefit of ALS drug.

local10.com

UHealth research may expand benefit of ALS drug

The FDA’s recent accelerated approval of a drug to treat a genetic variant of ALS is not only helping patients diagnosed with the disease, it could be used to slow or even stop the progression before symptoms first appear.

]]> 2 507b3e3ff038a5733cad672d67e14b0d MG Community Member posted an update in the group pALS with the SOD1 mutation on QALSody/Tofersen: Welcome to the group! I started on QALSody on June […] https://alsnewstoday.com/forums/activity/p/26799/ Tue, 28 Apr 2026 11:21:27 -0500 Welcome to the group! I started on QALSody on June 12, 2023. So far it has literally been a life changing experience. I’ve had a few hurdles, but all in all I’m doing well on the treatment. If you have the SOD1 mutation and are interested in or on the QALSody treatments, let the group know how things are going. I’m also willing to answer…

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