ALS News Today Forums | 1962 | Activity https://alsnewstoday.com/forums/members/1962/activity/ Activity feed for 1962. Fri, 17 Apr 2026 13:37:06 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 f656151babc08ad7c0472faaec504c08 1962 started the discussion Genetic testing in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/genetic-testing-2/ Wed, 28 Aug 2024 19:32:35 -0500 Genetic testing

My husband has ALS and is positive for the C9orf72 gene mutation. I am struggling with whether or not to tell our kids who will now have a 50% chance of having the mutation also. I know I should, but it will devastate my daughter. How have others handled this situation. My heart is breaking!

]]> b7919287e4783d5e35d88002c74bf820 1962 replied to the discussion Genetics, How Does this Knowledge Change Things for You? in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/genetics-how-does-this-knowledge-change-things-for-you/#post-25879 Wed, 28 Aug 2024 19:23:38 -0500 Reply to Genetics, How Does this Knowledge Change Things for You?

How did your children react to learning that they may have the mutation?

]]> ae1569d1bfd8393c1330e52fe7bcc2de 1962 became a registered member https://alsnewstoday.com/forums/activity/p/23342/ Wed, 10 Jul 2024 13:31:32 -0500 1