Alexandra Marroquin
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My boyfriend was diagnosed with ALS in April 2020 and began taking Radicava in May 2020.  He recently completed his third round of Radicava.  Although it is still early  on in the process, I have not noted much difference.  He since has began to use a breathing machine on a regular basis.  He had a port installed for the infusions.  I hope more people respond to this question as I  have never been a fan of medications and drugs  and would prefer my boyfriend take a more holistic approach if there is not going to be a considerable difference.
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My boyfriend of five years began to experience strong signs of ALS in January and ALS was confirmed in April 2020. We do not live together, but I spend much time at his house. The man who always treated me so well, loved me much and was always my rock is not always so nice anymore. I know that he is going through so much and it is still so new, I imagine if one has strong faith it would be easier to accept and not be so angry. I will continue to have patience, continue to be kind and continue to pray for Grace and for a cure. It was a tough evening tonight, but before I left, my man gave me a big hug and said “Thank you”, that was the first time, in what seems to be a very long time that he showed appreciation. It makes a difference. Your spouses (caretakers) lives, just like yours have been been turned upside down… just be kind to each other and show a little appreciation.