ALS News Today Forums | Ali Reza | Activity https://alsnewstoday.com/forums/members/alireza/activity/ Activity feed for Ali Reza. Fri, 03 Apr 2026 23:30:07 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 96cfffc3e008a6b374736be4b0b024d3 Ali Reza replied to the discussion Dude about diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/dude-about-diagnosis/#post-20382 Wed, 01 Sep 2021 05:54:06 -0500 Reply to Dude about diagnosis

Hi, My mother had BP, in 20 month it progressed alot, it seems it is very Slow if it  is BP, but if one side of the face, test for Myastnia Graviss (sorry if my spelling is not correct).

Wish you all the best

]]> d75a0b2973a621e8a92b0e49913d5427 Ali Reza replied to the discussion Ibudilast (Ketas) in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/ibudilast-ketas/#post-18023 Sat, 13 Mar 2021 05:44:13 -0600 Reply to Ibudilast (Ketas)

Dear Amanda/Dear Dagmar, Many thanks for your reply and kind comment, the doctor said better not to use it but not very strict this doctor just accepts approved medicines.

Thanks  a lot

]]> 56e3f1e71488302c012fe3f05a51459a Ali Reza replied to the discussion Ibudilast (Ketas) in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/ibudilast-ketas/#post-17993 Wed, 10 Mar 2021 07:10:59 -0600 Reply to Ibudilast (Ketas)

Dear Amanda,

Hi, I want to start giving TUDCA to my mother, a bit afraid of side effects, if there is no side effects  I want to start it, can you help me on that?

 

]]> 4bb210cd21dda6a80d6d5805f186338c Ali Reza replied to the discussion Ibudilast (Ketas) in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/ibudilast-ketas/#post-17992 Wed, 10 Mar 2021 06:44:37 -0600 Reply to Ibudilast (Ketas)

Dear Martin, Hi, hope everything goes well and your pALS to be stopped by these medicines, but my mother has Bullbar Palsy, and was on radicava but her neurologist does not let her take radicava anymore due to her respiratory weakness, she uses bipap, but as you mentioned you are on ventilator and use radicava, I wondered if with… Read more

]]> 8fe06b0f651836e214e4e81948ab65c6 Ali Reza posted an update: Hi everyone, about this Nurown therapy which phase 3 is […] https://alsnewstoday.com/forums/activity/p/7690/ Thu, 10 Sep 2020 04:51:12 -0500 Hi everyone, about this Nurown therapy which phase 3 is done and is going to be published by end of 2020, has any one got any news or update? Do you think in less than a year it will be approved by FDA and will be used? Is it only used for familia ALS? thanks

]]> 0 6f80eafd2c2874457414f6a3ea2a8652 Ali Reza posted a new activity comment https://alsnewstoday.com/forums/activity/p/7504/#acomment-7585 Sat, 05 Sep 2020 12:01:44 -0500 Thanks a lot dear Amanda, I am happy to join your community and I hope I can help this community and be useful. Thanks for accepting me
Meantime if you know about Nurown therapy time of approval and is there nay hope for my mother to get this treatment I would be appreciated if you let me know.
Thanks again, I hope all members of this… Read more

In reply to - Ali Reza became a registered member ]]> d2b8e05519200affbd93c0a04bb663b7 Ali Reza posted a new activity comment https://alsnewstoday.com/forums/activity/p/7504/#acomment-7528 Thu, 03 Sep 2020 04:52:59 -0500 Dear Dagmar,
So much thanks for your kindness, accepting me to join the forum, beside special thank to you for helping people who are challenging this disease.
My mother means a lot to me, not only me, but also all family member, who even ever see her once, and now she is diagnosed by bull bar palsy last year and symptoms started 1 and half… Read more

In reply to - Ali Reza became a registered member ]]> a9cdd38a3a9c1fc947253b8557a64e34 Ali Reza became a registered member https://alsnewstoday.com/forums/activity/p/7504/ Wed, 02 Sep 2020 15:04:47 -0500 4