ALS News Today Moderator

Hi everyone!

As you all might know, May is ALS Awareness Month and we couldn’t let it pass by without marking its importance. We have some initiatives planned throughout May.

One of these is a Zoom call exclusively for ALS forum members to participate in. Our forum moderators Dagmar and Amanda will facilitate the conversation, asking d…[Read more]

Hi everyone!

As you all might know, May is ALS Awareness Month and we couldn’t let it pass by without marking its importance. We have some initiatives planned throughout May.

One of these is a Zoom call exclusively for ALS forum members to participate in. Our forum moderators Dagmar and Amanda will facilitate the conversation, asking d…[Read more]

ALS News Today’s forums moderator, Amanda Sifford, discusses how COVID-19 is delaying rare disease and gene therapy trials.

ALS News Today · How COVID-19 is Delaying Rare Disease and Gene Therapy Trials

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how she copes with the stress and anxiety of being newly diagnosed with ALS.

ALS News Today · How to Cope With The Stress and Anxiety of Being Newly Diagnosed With ALS
Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s ideas help a design student redesign a rollator!

ALS News Today · Reimagining the Rollator: Ideas to Help a Design Student Redesign a Rollator
Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how COVID-19 is causing ALS Awareness Month Activities to move to virtual settings and to online social media platforms.

ALS News Today · COVID-19 Causes ALS Awareness Month Activities to Move to Virtual Settings
Are you interested in learning more about ALS? If so, please vi…[Read more]

ALS News Today’s forums moderator, Amanda Sifford, discusses how NORD is helping the rare disease community by opening the COVID-19 Financial Aid Program.

Are you interested in learning about financial assistance for pALS struggling during the pandemic? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how BioNews and FFF are teaming up to provide resources for rare and orphan disease patient communities during the COVID-19 pandemic and beyond.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how a study indicates that Problems in Lipid Metabolism May Be Linked to Motor Neuron Disease.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s tips on surviving Pandemic Pitfalls such as Compare and Despair.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

ALS News Today’s forums moderator, Amanda Sifford, discusses how Next Generation Sequencing of Genes may help in the Diagnosing and Treatment of pALS.

ALS News Today · How Next Generation Sequencing of Genes May Help in the Diagnosing and Treatment of pALS
Are you interested in learning more about ALS? If so, please visit https://alsnewst…[Read more]

ALS News Today’s forums moderator, Amanda Sifford, discusses how Dagmar’s Talking Myself into New Habits article can help pALS Talk Themselves into Talking More!

ALS News Today · “Talking Myself into New Habits” – A Column That Can Help pALS Talk Themselves into Talking More!
Are you interested in learning more about ALS? If so, plea…[Read more]

ALS News Today’s forums moderator, Amanda Sifford, discusses a literature review which suggests that FUS Mutations Cause Most Cases of ALS in Youth and Adolescents.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts on this news? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses how ‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Listen to this flash briefing episode and share your thoughts about it in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, discusses how Age and Sex Strongly influence ALS type and Symptoms.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

What are your thoughts on this news? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s Tips on handling stress during the COVID-19 Pandemic.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Did you enjoy these tips? Do you have any other you would like to share with us? Let us know about it.

ALS News Today’s forums moderator, Amanda Sifford, discusses How Proteins in Blood Cells May Be Markers of ALS and Its Likely Progression.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

What are your thoughts on this news? Let us know about it in the comment section below.

ALS News Today’s forums moderator, Amanda Sifford, Dagmar’s discusses strategies for facing Change.

Are you interested in learning more about ALS? If so, please visit alsnewstoday.com/

Did you enjoy this flash briefing? How do you adapt to change? We’d love to hear from you!

ALS News Today’s forums moderator, Amanda Sifford, discusses How the ALS Association Provided a Grant to Advance Treatment Aimed at Gut Microbiota.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Did you enjoy listening to this flash briefing? Share your thoughts with us.

ALS News Today’s forums moderator, Amanda Sifford, discusses Dagmar’s message about ALS Awareness: Minding Me While Minding the Message.

Are you interested in learning more about ALS? If so, please visit https://alsnewstoday.com/

Do you usually raise awareness about ALS? If so, how do you do it? What are your favorite type of ini…[Read more]