@alyna
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Iancu Alina replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 8 months, 3 weeks ago
Hello! Where exactly we can find Albrioza in Canda? What pharmacy ? It looks like there is nowhere…i need the pharmacy name and a phone numbere.Thankeyou!
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Iancu Alina replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 9 months, 3 weeks ago
In Romania there is not a clinc with that ALS …we had or neurologist who confirim that there are not such thing dr C.VASILESCU it is neurologist like all doctors with that profile he do reserch and put diagonses like othere one ..but that is it
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Iancu Alina replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 10 months ago
I am from Romania ,in here there is no asocition,comunity don’t even care,and there is nothing besize baclofen😔 in Romania nobody cares in here you don’t get help ….that makes me more sad 😔😔😔😭😭 We don’t have ALS clinic in Romania ,i fight in court with social services they refus to put me legal as a care givet everithing gose so wrong…[Read more]
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Iancu Alina replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 10 months ago
Thankyou everyone for your answers ,i will try some of your advice and see what hapens ,i takcare him and my kids by my self and it feels so bad cause i can’t rest,eat,make a bath ,work…relax and many othere things i used to do …it feels like i am build to be selfish with my self …i feel tierd.And cause i feel tierd i would like to know what…[Read more]
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Iancu Alina started the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 10 months, 2 weeks ago
Is there a chance for a cure? My husband has ALS ,we have kids a girl 9 years and a boy 5 years old we are helpless no incoming but we hope for a cure .please we need help I don’t want to lose my husband 😔😔😭
What treatment do others take for excess saliva and other symptoms?
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Iancu Alina became a registered member 10 months, 2 weeks ago
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Hello Iancu,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Iancu,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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Iancu,
Please, please reach out to your husbands medical team and ask them for some help too. If the Baclofen isn’t working they should have something else he can try. And, someone else mentioned a physical therapist. That is an excellent idea and that might be the best thig for him. You also need to take care of yourself. I now that is so hard…[Read more]