ALS News Today Forums | Andrea Krzysko | Activity https://alsnewstoday.com/forums/members/amkrzysko/activity/ Activity feed for Andrea Krzysko. Sun, 19 Apr 2026 22:03:25 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 5b346f6bcceadaa1d9192b67bb349d17 Andrea Krzysko replied to the discussion How old were you when you were first diagnosed? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/how-old-were-you-when-you-were-first-diagnosed/#post-26188 Mon, 30 Dec 2024 20:08:20 -0600 Reply to How old were you when you were first diagnosed?

I was 64 (2017)when I was diagnosed with PLS (primary lateral sclerosis) a subset that is more rare than ALS but has a lifespan of about 20 years. It affects only upper motor neurons. Looking back I had symptoms in 2013, but I thought my leg weakness was because of knee problems and knee replacements in 2014. In 2016 fell and broke ankle.…

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]]> 17216abcb986b92648211175f1c97108 Andrea Krzysko replied to the discussion Do you consider yourself a “hero” for living with ALS? How about a “survivor?” in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-consider-yourself-a-hero-for-living-with-als-how-about-a-survivor/#post-22831 Thu, 06 Oct 2022 20:47:33 -0500 Reply to Do you consider yourself a “hero” for living with ALS? How about a “survivor?”

I consider myself a fighter. I have good days when I rejoice and bad days when I dig in my heels. I strive to tip the balance in favor of good days by planning ahead for what may happen and adjusting my attitude about what is important. I have professional and personal helpers who support me in ways that I never even knew existed. Mostly, I try… Read more

]]> ebd9e80b0a779685420d13427b379860 Andrea Krzysko changed their profile picture https://alsnewstoday.com/forums/activity/p/17101/ Thu, 08 Sep 2022 04:50:31 -0500 0 12c68e437b4c18de0b97b6c5f3b0b173 Andrea Krzysko updated their profile https://alsnewstoday.com/forums/activity/p/17100/ Thu, 08 Sep 2022 04:23:15 -0500 0 931de8b1c9c7300d6f269e6744290d66 Andrea Krzysko replied to the discussion Social Death in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/social-death/#post-22616 Tue, 06 Sep 2022 23:02:59 -0500 Reply to Social Death

I have PLS and have been in a wheelchair for the past 5 years. When it came time to move to a motorized chair 2 years ago I elected to pay out-of-pocket for a power seat elevation system since Medicare did not pay for this feature. It has been a game changer for me in social situations since I can now talk face to face with others. It… Read more

]]> e498fb35f57294f48723345e51b703bb Andrea Krzysko became a registered member https://alsnewstoday.com/forums/activity/p/15261/ Wed, 02 Feb 2022 14:16:47 -0600 2