ALS News Today Forums | andyroo | Activity https://alsnewstoday.com/forums/members/andyroo/activity/ Activity feed for andyroo. Sat, 04 Apr 2026 05:41:39 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 00e8fe387b23fe7f6bb0f76ecd1caa56 andyroo replied to the discussion What are your thoughts about feeding tubes? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-are-your-thoughts-about-feeding-tubes-2/#post-26675 Fri, 15 Aug 2025 14:39:04 -0500 Reply to What are your thoughts about feeding tubes?

I had a feeding tube put in about six weeks ago. The surgery went well, but it took a week before I felt well enough to start feedings regularly. I was given little instruction on caring for the feeding tube and had to make adjustments along the way to make this whole endeavor worthwhile.

I only use gravity feedings and picked up a device called…

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]]> 5fb6a284e5d843a9cf0ef242a2c37358 andyroo replied to the discussion Do you have Familial ALS? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-have-familial-als/#post-26502 Thu, 22 May 2025 20:11:43 -0500 Reply to Do you have Familial ALS?

Hi Amanda,

I was diagnosed August 13, 2024 with familial ALS. The genetic mutation I have is SQSTM1. I am not enrolled in any clinical trials as I’ve been informed by my ALS clinic that I don’t match up to the current available trials.

I am still holding on to hope (I’m careful to not rely on heavily on hope) that something may come along.

My…

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]]> 495aa989bb4f6aa025f79b5ce20fbed0 andyroo became a registered member https://alsnewstoday.com/forums/activity/p/24891/ Mon, 17 Mar 2025 13:28:07 -0500 1