Azizullah Khattak

Hi Susan,

Is the cost you listed for a one month’s supply or for longer than this? Thanks!

Wow, I am learning a great deal from all of you that are sharing.  So many things that never even crossed my mind. It is amazing how much we can learn from each other.

Amanda

Katie, you are so right!

Amanda, Thank you for your help.  This is a difficult subject to think about and come to terms with but I guess it’s best to look into it in order to be prepared for the end-of-life.  Thanks again.

Kathy,

My family had Hospice care for both my father (ALS) and my stepmother (Cancer).  We used their services for end-of-life care and they were fabulous. The nurse and social worker were so educated, informed, compassionate and helpful for our family.  My parents passed away just 11 months apart so we developed a close relationship with our H…[Read more]

Amy,

Thank you so much for sharing.  Your mom was a valuable member of our forums and she helped many of our members with her input and advice.  When a family can think of others when they are going through such a tremendous loss just shows how kind and generous Marianne’s family is. Thank you for taking the time and energy to raise so much m…[Read more]

Amy, thank you so much for your post and I’m so sorry for the loss of your mother.  ALS is such a horrible disease and causes so much suffering.  We will miss Marianne!

Thank you Dagmar for providing the link to Marianne’s obituary.  I do not know how to do that so I appreciate your help. RIP Marianne

Our forum members amaze me daily.  You all ask and answer some tough questions daily! I’m so proud that I am part of such a unique online community.  It’s a bitter sweet experience to be honest.  I’m sure you can all understand that sentiment. Carolyn, I cannot even begin to put into words how much I have learned from you. Grace to begin with. Th…[Read more]

Richard,

Any time a post is deleted or edited, Dagmar and I consult each other and include the other on the response. The member is emailed and we explain why the post or comment was edited or deleted.  In our community standards it is very clear that comments are supposed to contribute to the discussion, and provide information or support. You…[Read more]

I believe it started with swallowing. Weight loss and breathing, shortness of breath. We have Kindred Hospice coming in and they don’t seem to know that much about this disease. In fact, I don’t think to many people in Dothan,Al are educated on ALS. If so they are hard to find. I’m at a lost. Ken’s nose runs like a faucet lately and his breathing…[Read more]

Shannon,

ALS effects each person differently so the exact path and length of time each pALS has is difficult to determine. Do you know if your husband has a genetic mutation or if his ALS is sporadic?  How has his progression been so far? Has it been limb onset or bulbar? All of these factors play a part in helping you understand and prepare.  H…[Read more]