| Short Bio |
Slow progressing ALS, also have PLS diagnosis at Johns Hopkins. Diagnosed 12/2014. Lawyer still practicing 6/21 because I can and I keep my mind active. I’m blessed by support of my wife, Peg, and lots of family and friends, especially a Braintrust of folks who are medical professionals or biotech execs who have guided me in my journey. My oldest daughter also has Tetrasomy 18p, a rare chromosomal abnormality, and over 30 years experience, including 10 years on a board prepared me for a medical condition with more questions than answers.
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| How long have you or the person that you are caring for had ALS? |
6.5 years
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