@billhayden
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Bill Hayden replied to the topic Looking Towards a Brighter Future in the forum Coronavirus (COVID-19) and ALS 1 year, 5 months ago
I have a question. Has there been a consensus on how the vaccine has impacted those with ALS? I have read where there have been some side effects causing healthy people to have tremors and other neurological side effects. My muscle tremors are so bad now, that I am afraid of making them any worse!
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Amanda and
Bill Hayden are now friends 2 years, 3 months ago -
Bill Hayden changed their profile picture 2 years, 4 months ago
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Bill Hayden replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 4 months ago
I would like to ask if anyone has suggestions on how to tone down “a high startle response” Everything seems to startle me? I stepped on a pebble, jumped in the air came down on the front of my foot and fell backwards. A fractured toe later I watch every step now. But my cell phone ringing will make me jump. UGH!!
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Bill Hayden replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 4 months ago
Yes! When I was very first diagnosed in November 2019 it was only in my left arm. Soon my whole body felt like it was twitching. I started a regiment of CBD oil on recommendation of my Neurologist and after three weeks I am glad to report my twitching has diminished back to only my left arm, but even that seems to be milder than previously. Also I…[Read more]
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Bill Hayden posted a new activity comment 2 years, 4 months ago
Sorry misspelled your name, Dagmar in my previous response
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Bill Hayden posted a new activity comment 2 years, 4 months ago
Thank you Damar!
I have been reading your post for several weeks now and find so much of the conversation helpful since I am a newbie and trying to figure out what is going to happen next. Thank you for making me feel welcome.-
Sorry misspelled your name, Dagmar in my previous response
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Bill Hayden became a registered member 2 years, 4 months ago
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Hello Bill,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]
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Thank you Damar!
I have been reading your post for several weeks now and find so much of the conversation helpful since I am a newbie and trying to figure out what is going to happen next. Thank you for making me feel welcome.-
Sorry misspelled your name, Dagmar in my previous response
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Hello Bill, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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