@billott
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Bill Ott replied to the topic ALS Life Expectancy vs. Quality Of Life in the forum Living With ALS 6 months, 2 weeks ago
Hi, Victor. There is one last hope I cling to. Doctor Rick Bedlack, head of the Duke ALS Clinic, has found 60 people who rapidly progressed to Hospice care and then reversed, as in fully recovered. So I’m not giving up. I fully intend to reverse, if they don’t find a cure first. 🙂
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Bill Ott replied to the topic ALS Functional Rating Scale; Are Subjective Scores a Valid Measurement? in the forum Living With ALS 2 years, 4 months ago
I’m a hypochondriac. If you tell me the symptoms and give me a week I’ll have them. As such, for me, subjective measurements are useless. Subjectively, I am a mess. 🙂
But I do have a few objective measurements that help mitigate my hypochondria. I take 22 pills a day, 11 in the morning and 11 after dinner. Even though I am convinced I have a…[Read more]
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Dagmar Munn and
Bill Ott are now friends 2 years, 4 months ago
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Bill Ott replied to the topic How to Conquer the Gap Between Diagnosis and Accepting Your ALS in the forum Living With ALS 2 years, 4 months ago
Thanks, Dagmar. At 9 years in, you are an inspiration to me. I am stable and still walking though not well, It never occurred to me that I could be 9 years in.
Just before the August 2018 email went out, I called my Mom to give her my diagnosis. I was a bit stressed about the call, not knowing how she’d take it. Her only response was “Well, I…[Read more]
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Bill, I love your attitude and the story about your mother.
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Bill Ott replied to the topic How to Conquer the Gap Between Diagnosis and Accepting Your ALS in the forum Living With ALS 2 years, 4 months ago
It appears that everyone approaches ALS from a different direction. To some extent I am still in denial, but my denial affects my willingness to embrace help from the ALS Association, not me relationship with friends and family. When I was diagnosed in August of last year I send the following email to everyone I knew (100 of people). I only got…[Read more]
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Bill, that is an wonderfully written letter. I am so happy you shared it with our members. You nailed so many things! ALS is still a mystery to so many people. I think when a person or their family, then it appears to be all around. In reality, it isn’t common at all. Thank you for sharing such a personal writing.
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Bill Ott became a registered member 2 years, 6 months ago
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Hi Bill, my name is Michael Morale. I’m the Director of Multichannel Content for ALS News Today. I wanted to welcome you and thank you for joining our forum. We hope that you will take time to go through all of the open conversations that are actively in progress, and feel free to join in. We strive to bring you the information that you need to m…[Read more]
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Hello Bill, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]
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