Base

Name

Lisa Bonahoom

Nickname

lisa-bonahoom

Gender

Female

Location

San Mateo, CA

Relationship

Patient

Short Bio

Living with ALS since 2017, I had to give up performing, but I am still a designer for the opera. My ALS is genetic, a gift of a mutating C9orf72. I have Bulbar Onset, and still dance, tap and Jazz.  I will until I can’t.  I have faith in God and a huge, wonderful family.

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

Since 2017. Almost two years.

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