ALS News Today Forums | Buzz | Activity https://alsnewstoday.com/forums/members/buzz/activity/ Activity feed for Buzz. Wed, 15 Apr 2026 23:56:09 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 754e01048703a88e6e5fcaba81cdaea8 Buzz replied to the discussion Do you attend an ALS support group? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-attend-an-als-support-group/#post-25612 Tue, 11 Jun 2024 20:08:53 -0500 Reply to Do you attend an ALS support group?

My best experience with an ALS support group is attending our local in-person Watkinsville Mighty ALS Support Group! It is held in Athens, GA at the Athens-Ben Epps Airport on the 4th Monday of each month at 11:00 AM. The group is part of ALS United of Georgia.

https://alsgeorgia.org/navigating-als/support-groups/

alsgeorgia.org

Support Groups | ALS United of Georgia

Support Groups | ALS United of Georgia

]]> 94debded133d3318fcf8b9a12f2888b0 Buzz replied to the discussion ALS drugs in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/als-drugs/#post-25335 Thu, 14 Mar 2024 19:54:55 -0500 Reply to ALS drugs

I have stopped taking Relivrio this week with this news and advise from my doctor. I’m now only taking Riluzol, which I’ve been taking since my diagnosis in September.

]]> a11f1b6955c6f832d2f0194b5be6f20a Buzz posted a new activity comment https://alsnewstoday.com/forums/activity/p/21248/#acomment-21378 Mon, 18 Dec 2023 13:45:51 -0600 Thank you for the welcome Dagmar! I’ll keep y’all posted.

In reply to - Buzz became a registered member ]]> 4b34c3437a1a8e25038a9a8fb6da3c87 Buzz posted a new activity comment https://alsnewstoday.com/forums/activity/p/21248/#acomment-21301 Wed, 13 Dec 2023 19:02:39 -0600 I’m under the care of Emory in ATL and Mayo in Scottsdale. I’m taking riluzole and just requested insurance coverage for RELYVRIO. That raises one question. Should I reach out to Anthem BCBS to request coverage for that expensive prescription?

My symptoms started 10/2022 with neuropathy in my lower legs and now my fingers are weakening.

Thank you!

In reply to - Buzz became a registered member ]]> 24d76cb6623dd409b853b269f1ef5f9b Buzz posted a new activity comment https://alsnewstoday.com/forums/activity/p/21248/#acomment-21282 Mon, 11 Dec 2023 19:19:01 -0600 Hi Amanda! Thank you for the welcome! I was diagnosed in October, with symptoms dating back to 10/22. My mother passed from ALS 30 years ago.

In reply to - Buzz became a registered member ]]> 9f2d651f91cbced6a67b2407ba7d44c3 Buzz became a registered member https://alsnewstoday.com/forums/activity/p/21248/ Fri, 08 Dec 2023 15:42:14 -0600 6