ALS News Today Forums | carene | Activity https://alsnewstoday.com/forums/members/carene/activity/ Activity feed for carene. Sat, 04 Apr 2026 01:32:24 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 b9b8ee4b5858a8b0f4061a732acdb533 carene replied to the discussion Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-made-plans-for-any-vacations-this-summer-how-is-preparing-for-trips-or-vacations-different-from-your-pre-als-days/#post-26079 Fri, 01 Nov 2024 12:39:28 -0500 Reply to Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days?

I love that you are traveling. I was diagnosed in February 2024. We have been on two trips and both were fairly easy. My husband and I met up with all of his siblings in St. George Utah. We didn’t do a lot. We mostly just visited with one another since it had been a while. October of this year we went to Idaho where we have a lot of family and…

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]]> 8d64e72b68e1f2a82d3d6b29566e3fdf carene replied to the discussion Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-made-plans-for-any-vacations-this-summer-how-is-preparing-for-trips-or-vacations-different-from-your-pre-als-days/#post-25802 Tue, 30 Jul 2024 23:07:59 -0500 Reply to Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days?

I find the heat more difficult than ever before because I am in a neck brace. It’s hot and sweaty and gives me a rash. A sweet friend of mine made a sleeve out of satin fabric to slide over the brace. It helps some not to have it rub my neck raw.

]]> a9d978166efdf9f5fb7e6d738ae7f186 carene posted a new activity comment https://alsnewstoday.com/forums/activity/p/23341/#acomment-23449 Mon, 22 Jul 2024 09:33:11 -0500 Thank you. I have been reading the ALS news for a few months. I knew ALS was going to be the diagnoses and I wanted to familiarize myself with this group before joining. This email has a lot of good information

In reply to - carene became a registered member ]]> af769c5ca3c00ae6f9aabe17b13f4c5d carene replied to the discussion Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-made-plans-for-any-vacations-this-summer-how-is-preparing-for-trips-or-vacations-different-from-your-pre-als-days/#post-25744 Tue, 16 Jul 2024 01:46:32 -0500 Reply to Have you made plans for any vacations this summer? How is preparing for trips or vacations different from your pre-ALS days?

I was diagnosed the end of June. In July I went to 3 out of state weddings for family members. This weekend we are going to see some friends who live in the mountains in ShowLow AZ. In October we are going to a family reunion in Idaho. Right now even though it’s exhausting I still enjoy traveling and spending time with family. All of my children…

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]]> edf6eacf99d0c6db4fa4b29446505dc9 carene became a registered member https://alsnewstoday.com/forums/activity/p/23341/ Wed, 10 Jul 2024 13:31:31 -0500 3