Carolyn Barry

Maryann, I’m sorry. I miss read the “who” part.

@L Hagman,
That’s great news! Please let us know how you are doing and what you think of the trial.
Amanda

Mel,
I think there should be a standard and protocol for diagnosis. I think if you have insurance, the insurance company would require specific requirements. I hope you have success and feel and improvements.
Amanda

@Mel,
My doctor did blood work a couple of times, as well as testing spinal fluid, genetics, urine, EMG, Nerve conduction tests, Fine and gross motor skills assessments, cognitive assessments, and a ton of lifestyle and diet forms (that took a couple of hours.) There were more too! TESTs, TESTs, TESTs!! I did not have any thing like lyme…[Read more]

Here are a few peer reviewed medical/science articles and other articles about researching the root causes of…[Read more]

Good morning Lisa,
No, I don’t, not at all. The conversations goes where it goes, and other members read the discussions, chime in and add information. It isn’t uncommon at all. But thank you for all your help and support. Your contributions are appreciated! We try very diligently to ensure that our forum policies are adhered to and that…[Read more]

Yes Lisa,
My last response was following the conversation, not directed at your original post.

Hi Mel,
How is the SOT performed and how does it alter your DNA? My understanding is that in order to alter DNA the treatment must pass through the blood brain barrier and that can only be done using an intrathecal procedure and going through cerebral-spinal fluid. Is that part of the process? What are they using? I’m eager to learn more…[Read more]

I’m continuing to research BodyScience and it does not appear that they accept insurance. That is a huge red flag for me, especially since they have medical doctors working there. Has anyone been able to use their health insurance at BodyScience? Also, I looked at the “Home Continuation” kits for pALS that had their treatments! Wozer, the prices!…[Read more]

Dustin,

I’ve heard of Ketamine for Depression and related disorders, but not ALS. When I googled, there is a clinic in Florida that specifically states Ketamine treatment for people with ALS. BodyScience is also in Florida. Now I’m wondering if Florida laws are more lenient? I do know that Ketamine can help with depression and pain, so it…[Read more]

Brian, thank you for sharing. I hope that you understand mine and Dagmar’s role on the forum. We are both very dedicated and protective of our community. There are so many scams targeting pALS and other people with rare diseases, and most promise a magical cure that no one else knows about. Without research, and valid data and information, we…[Read more]

Brian,
Do you work for BodyScience? You said, “we’re working on this.” I can see if you are having positive results you are probably invested and have the desire to help others which we appreciate!

@ all forum members, As for a “cure,” I caution our forum members to do their research prior to getting treatment of any kind that is not from…[Read more]

Dagmar,
I asked the same question on a different thread and Brian pm’d me a phone number. I asked that he post the information (not the phone) number so that our members could see the source and research on their own. That was not done. I’m leary of this company. I have been doing research and if I learn anything that is documented by…[Read more]