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Hi Jennifer. Thanks for sending me a friend request. I see you have many friends on this site……that is good! I read that you mentioned the ALS Association of Phladelphia. Do you live in or near Philly?
I live in New Jersey, so, I go the Philadelphia chapter. BTW, thank you for subscribing to my blog!
Hi Jennifer, We used to love in NJ but we sold our house 2 years ago and moved to PA. Where in NJ do you live and who is your doctor for ALS?
In South Jersey. I don’t see my neurologist any more. Haven’t needed to. I have a doctor that makes house calls and he changes my trach & my feeding tube. I can’t move anything, except my head.
I really feel for you, to be so incredibly limited has to be beyond difficult. I’ve read your blog, and you are a total inspiration to me. What gives you such strength? Your blog with such a wonderful way of expressing your thoughts, is a gift to anyone who reads it. You are in my prayers each day.
Thank you for your prayers! I really appreciate them. I get my strength from God. Every morning, I wake up and say, “This is the day that the Lord hath made, I will rejoice and be glad in it.”