@carra
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Alma Carr replied to the topic Your ALS Travel Essentials in the forum Living With ALS 3 weeks, 1 day ago
For me my one essential would be my enteral syringe since I am totally dependent on tube feeding.
I went to Mt. Rainier National Park for one week from So. Calif. and had a good time a couple weeks ago. About a month ago, went to Denver and Rocky Mtn Natl Park. I guess my other essentials or that make my life easier, are iPad to use writing…[Read more]
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Alma Carr replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 3 months ago
Judy, I did take tudca then stopped. Not sure if it even helped. My big issue is in the bulbar area. Extremely difficult to speak, swallow food, soft foods are impossible, luckily I can still walk, well I’m noticing my right leg is weakening so I’m blessed this far…well, to a certain extent.
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Alma Carr replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 3 months ago
Sandra, thank you. There’s a CBD place nearby, I think I’ll check it out. However, I need an oil or liquid bc I can’t swallow pills, bulbar sucks! So I have a feeding tube.
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Alma Carr replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 3 months ago
Sandra, I’m curious about the CBD you take for excess saliva. I’m using atrophine drops and don’t feel it helps all that much.
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Alma Carr became a registered member 7 months, 2 weeks ago
Hello Alma,
I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with A…[Read more]
Hello Alma,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]