ALS News Today Forums | Caryl | Activity https://alsnewstoday.com/forums/members/caryl/activity/ Activity feed for Caryl. Sun, 19 Apr 2026 05:29:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 d9b2d4ec97ef3066c6710bb13a0fb491 Caryl replied to the discussion Do you have a funny moment you want to share? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-have-a-funny-moment-you-want-to-share/#post-24621 Fri, 15 Sep 2023 17:22:48 -0500 Reply to Do you have a funny moment you want to share?

My 3 yr old grandson, in a discussion with his mother, told her; Nana must be a toddler because she is’ learning’ to talk and ‘learning’ to walk….his observation about my declining abilities. It was so sweet and innocent we had to laugh!!

]]> 9524f1ccbdd692c7e7f772c3fe160682 Caryl replied to the discussion Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/relyvrio/#post-23559 Wed, 15 Feb 2023 14:29:21 -0600 Reply to Relyvrio

I was diagnosed with ALS in May 2022…I’m a 74 years old. I was told I have a slow moving variant. I am taking Rilutek, Radicava, and Relyviro.I’ve been taking them for about 6  monthss and am still fairly functional except for fine motor control.I have problems speaking and weakness on my right side.ity

My question is this…I have a… Read more

]]> 07fb2193dc981eaa7afac801166a4998 Caryl became a registered member https://alsnewstoday.com/forums/activity/p/18045/ Thu, 05 Jan 2023 20:24:19 -0600 2