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@cheryl4705
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Cheryl replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months ago
Hello Dick,
My husband was diagnosed with Bulbar ALS Jan. 2020. He is on all the same medication as your wife: Radacava, Nuedexta and Riluzole. We’ve just added the Relyvrio about 1 month or so. Saliva has been a big problem to control, but he has been on transdermal patches for at least a year.
I’m glad to hear your wife is doing as wel…[Read more]
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Cheryl became a registered member 2 years, 11 months ago
Hello Cheryl,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or…[Read more]
Hi Cheryl, we should keep in touch. Is a transdermal patch scapolomone? Karen is taking 1200 mgs of Guaifenisen and also Glycopyrrolat (sp?). They are going to Botox if the above does not provide relief. Also using nebulizer, cough assist, suction and bi pap. We had to create an excel spreadsheet to track everything. Not familiar with the odor…[Read more]