ALS News Today Forums | Carol | Activity https://alsnewstoday.com/forums/members/cmdgb6gmail-com/activity/ Activity feed for Carol. Mon, 13 Apr 2026 12:51:53 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 c0227e3e0cd1560ff12509248c99bb66 Carol replied to the discussion What aspect of ALS has surprised you the most? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/what-aspect-of-als-has-surprised-you-the-most/#post-23784 Fri, 14 Apr 2023 13:46:26 -0500 Reply to What aspect of ALS has surprised you the most?

I agree. I’m in daily pain. Every muscle, not just the cramping but just constant pain. Knees are painful. They snap and pop. Whole body hurts. Etc etc Also was told by director of her als clinic. There’s no pain with ALS.  Going to start back up with my local pain management clinic but acupuncture massage therapy,painful for me, didn’t help… Read more

]]> 7ad9e95c5059c305b2d45fbbd7f34eae Carol replied to the discussion Pain in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/pain/#post-22470 Tue, 09 Aug 2022 17:46:52 -0500 Reply to Pain

Very similar symptoms also undiagnosed. I take Baclofen which helps some. You should be able to take Tylenol. Best to ask doctor. Good luck to you. It’s a long terrible journey to wait through for diagnosis. Want to share journey I’m here.

]]> 57590491bd68e436163ad05ed2a24847 Carol started the discussion Can anyone give advise in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/can-anyone-give-advise/ Mon, 11 Oct 2021 12:37:30 -0500 Can anyone give advise

Going for my second emg tomorrow. My symptoms have rapidly progressed. Weakness of all extremities now. Left leg stiff with visible atrophy . Cramps and twitches more increased in different areas. Neuromuscular doctor is doing emg. Any suggestions of what to ask doctor at time of test. Symptoms started a year ago. Everything else has been… Read more

]]> 3dcb870a679a0bfe3dfef082462ddb10 Carol posted a new activity comment https://alsnewstoday.com/forums/activity/p/13874/#acomment-14029 Tue, 05 Oct 2021 12:54:34 -0500 Can you please share with me any info on new drug therapies or who is doing clinical trials that are promising

In reply to - Carol became a registered member ]]> 5a58c3b8b11f9131295b6296953aa52e Carol posted a new activity comment https://alsnewstoday.com/forums/activity/p/13874/#acomment-14009 Mon, 04 Oct 2021 16:50:36 -0500 Thank you. Looking forward to learning as much as I can to prepare me for the near future and insights of how to cope with the progression of symptoms mentally and physically.

In reply to - Carol became a registered member ]]> ebfcdae53836c1e3bd0b057d05872974 Carol became a registered member https://alsnewstoday.com/forums/activity/p/13874/ Thu, 23 Sep 2021 21:32:31 -0500 5