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Donna Caruso

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@dcaruso

Has anyone else had tinnitus and is it associated with ALS? My husband’s ears are ringing constantly and nothing he does seems to help. View
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      Susan replied 3 weeks ago

      Hi 👋

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      Susan replied 3 weeks, 1 day ago

      Hello 👋

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        Judy Weger replied 2 weeks, 6 days ago

        where do you live?

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    Dagmar Munn replied to the topic Teeth and Bulbar ALS in the forum Living With ALS 3 weeks, 1 day ago

    Pat, over the past years of my ALS I’ve had to visit the dentist several times – – replacing a filling that fell out and having caps put on several teeth. Initially, I was so worried about choking… having to tilt back in the chair and having water sprayed in my mouth (visions of the awfulness of waterboarding!).

    But I found out that modern…[Read more]

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    Dagmar Munn replied to the topic Riluzole and Radicava in the forum Living With ALS 3 weeks, 2 days ago

    Well said, Mary. Well said. I agree that since we don’t have exact twins of ourselves, to serve as the “control,” we have no way of knowing exactly what combination of treatments and therapies work for our body. Trial and error, doing your research, and listening to your body seem to be the only guides for us.

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