@dickfitzs7-com
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Dick Fitzpatrick and
Diane Hanberry are now friends 2 weeks, 6 days ago
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Dick Fitzpatrick replied to the topic The love of my life ( Kenneth E Steadham) in the forum In Loving Memory 1 month, 1 week ago
Prayers sent
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Dick Fitzpatrick posted a new activity comment 1 month, 2 weeks ago
Hi Cheryl, we should keep in touch. Is a transdermal patch scapolomone? Karen is taking 1200 mgs of Guaifenisen and also Glycopyrrolat (sp?). They are going to Botox if the above does not provide relief. Also using nebulizer, cough assist, suction and bi pap. We had to create an excel spreadsheet to track everything. Not familiar with the odor…[Read more]
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Dick Fitzpatrick and
Dawn K Popp are now friends 2 months, 2 weeks ago
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Dick Fitzpatrick replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 2 months, 2 weeks ago
<p style=”text-align: center;”>My wife was diagnosed with Bulbar in July 2022. Takes Relyvrio through tube with no side effects. Prior to tube, the taste almost made her quit the med. She also takes Radacava, Nuedexta, and Riluzole. Just added Glycopyrrolate for saliva. Eating, talking, swallowing impossible but muscle strength and breathing is…[Read more]
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Amanda and
Dick Fitzpatrick are now friends 3 months ago
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Dick Fitzpatrick posted a new activity comment 7 months ago
Thank you Amanda. Karen was notified just last week that her disease was not inherited, thank goodness. Look forward to participating.
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Dick Fitzpatrick posted a new activity comment 7 months ago
Karen ordered Andrea Caban course today.
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Dick Fitzpatrick posted a new activity comment 7 months ago
Thank you Dagmar for such a prompt response. Karen and I will be all over your forum and blog posts. Will also be looking at the on line course. We are very grateful for any help. Thank you again
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Great! I’m happy to help answer any questions you both may have while going through the course. Don’t feel you need to rush through it – – I took about a week of time per chapter, so I could fully practice and learn each technique.
Hope your weekend will be a good one! Dagmar
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Dick Fitzpatrick posted an update 7 months ago
New to this site. My wife Karen was recently diagnosed with Bulbar Onset ALS (July 19, 2022). Her ability to talk has deteriorated rapidly since “hoarseness” only started in February, speaking fine through June but now not so good. The recent post re speech and technology was of particular interest. On a positive note, her breathing seems fin…[Read more]
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Hell Dick,
I highly recommend you check out this online course “Living Speech Series” http://www.andreacaban.com/als
I took the course over 4 yrs ago when my speech was deteriorating… and it helped me. I am still able to speak. I’ve written much about my speech experiences both here in this forum and on my personal…[Read more]-
Karen ordered Andrea Caban course today.
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Thank you Dagmar for such a prompt response. Karen and I will be all over your forum and blog posts. Will also be looking at the on line course. We are very grateful for any help. Thank you again
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Great! I’m happy to help answer any questions you both may have while going through the course. Don’t feel you need to rush through it – – I took about a week of time per chapter, so I could fully practice and learn each technique.
Hope your weekend will be a good one! Dagmar
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Dick Fitzpatrick became a registered member 7 months ago
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Hello Dick,
I know we’ve already communicated with each other, but officially – – Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing…[Read more]
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Hello Dick,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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Thank you Amanda. Karen was notified just last week that her disease was not inherited, thank goodness. Look forward to participating.
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