When I first read this article, I was disappointed, sad, mad, and let down to only name a few of my emotions.  Thinking back to when I received all my testing to confirm if I had ALS,  I got a spinal tap… The strange thing was the day after my spinal tap I got a CSF leak from moving furniture the following day (Horrible headache).  The… Read more

Hello Giselle,

My first symptoms of ALS were shortness of breath like your husband.  I kept thinking my struggles with working out (jogging, elliptical, HIIT training) were due to me getting older.  I was also noticing facilitations in both of my calf muscles. By the spring or early summer of 2019 my breathing issues were getting worse until I… Read more

I played Football only through High school, afterward I went into construction but continued to workout (run, weight lifting, HIIT, Cross Fit, and MMA), I eventually into law enforcement.  I’d like to know the % of athletes, former athletes, who contract ALS.