Eric Barnett
Forum Replies Created
-
Happy birthday. I turned 60 back in November. We’ve all been there as others have said. Wishing you the best!
-
When I first started taking it it gave me severe stomach pains. Did that for about 3 months. Stopped for about 4-5 months.
started back up for about 6 months. No more for me. Felt like there was heavy weights on my liver/diaphragm area.
I did not experience dizziness though. -
Yes an Inspiration for sure !
-
Mine started out in my right hand/arm. Atrophy, weakness & lack of coordination.
GP sent me to get nerve test suspecting carpal tunnel.
That guy said nope not carpal tunnel it’s coming out of your neck region. Up Next was an MRI on my neck. They did find a problem with three of the disc. So off I go see a spine and brain surgeon.
He says symptoms do not support what the MRI shows so he ordered another nerve test with “his guy”. This guy says well there’s definitely carpal tunnel issues but there are some other puzzling things going on. He suggested carpal tunnel surgery first and see what happens. Sooo had carpal done in 3/18.
I went back six months later and told the spine guy that nothing has changed with the symptoms. There I go for another nerve test with his guy. Results were no carpal tunnel issues but there was still something else that puzzled him. Sent me to Seattle Washington in January 2019.2 experts and several hours later with more testing I had a diagnosis of ALS. Doesn’t it seem like there’s an off a-lot of so-called experts out there doing a lot of guessing with us?
-
How do I find out if there’s one near me?
-
Most of my twitching is concentrated in my right arm and hand. Sometimes it’s calm while other times very hard to eat with a fork or spoon. Quite a bit of upper body atrophy.
So far legs are holding up. -
I don’t understand why this isn’t available in pill form?
-
I’m a year into my diagnosis now. I hope the best to everyone!
-
I too quit taking Riluzole. Lots of pain between chest and belly button area. Tried 1st time for 2 months. Took a break for 3 months then went back on for about 4 months. Pain wasn’t worth it.