@ellen
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Ellen replied to the topic AFOs: Are they worth it? in the forum Mobility Aides, Assistive Technology and Medical Equipment 10 months ago
About a year ago I was diagnosed with ALS. I am wearing metal AFO’s, which are a necessity for me due to bilateral foot drop. I am very glad I have them. I don’t know what a rollator is but interested in finding out more about their usefulness. I try to walk as much as I can and think perhaps having one would be useful. So much to learn. Th…[Read more]
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Ellen replied to the topic Member Check In in the forum Living With ALS 11 months, 2 weeks ago
I’m thankful for the life I have had and try to take each day at a time. I am grateful for the abilities I have today, for my husband, my family, my support system and above all for my faith that sustains me.
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Ellen replied to the topic What are your opinions and thoughts on volunteering for ALS clinical trials in the forum Research Topics 1 year, 1 month ago
I was diagnosed about 6 months ago. I have signed up for the Healey Platform trial and will begin in early May. If given a placebo, I understand I will be able to try the medication after a 6 month study. While I’m hoping to benefit, I also think doing what I can to benefit the community is important to finding a cure someday. I do have a lim…[Read more]
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Ellen became a registered member 1 year, 1 month ago
Hello Ellen,
Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
Hello Ellen, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]