ALS News Today Forums | Eric_N | Activity https://alsnewstoday.com/forums/members/eric_n/activity/ Activity feed for Eric_N. Wed, 08 Apr 2026 23:51:19 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 fd0574f02d8e280470da82724dc5cf1c Eric_N replied to the discussion 14th Toferson Treatment and coming up on a Year of Dosing!! in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/14th-toferson-treatment-and-coming-up-on-a-year-of-dosing/#post-25662 Thu, 27 Jun 2024 20:58:16 -0500 Reply to 14th Toferson Treatment and coming up on a Year of Dosing!!

My family had no known cases of ALS but I have a SOD1 abnormality in my
genes. I would suggest pursuing the genetic testing because if he
does have a known defect, it can open up new avenues of treatment and,
just as helpfully, help to ignore treatments that do not apply.

invitae.com did my testing at no charge. It took a couple of weeks…

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