Eric Kentor

Several months ago, I was referred to a compounding mail order pharmacy in New Jersey.  The initial dose I was prescribed came to $1,050/month (though it may be a lower dose than your current one).  I did not follow up after the first prescription because I enrolled in the HEALEY trial instead.  The pharmacy is Hopewell, and I included below wh…[Read more]

It appears to me that you are getting it at a good price.  I had planned to start it several months ago, but then became eligible to enroll in the HEALEY clinical trial (Regimen D), so I set it aside.  I had purchased a one month supply for about $1,000.

For anyone out there taking sodium phenylbutyrate + TUDCA, how have you responded to the c…[Read more]

I’ve had recurring/periodic issues with constipation since my diagnosis in March 2020, and it has become a priority for me to try to stay ahead of the issue.  It’s periodically a pretty severe issue for me, and I’ve eliminated bananas from my diet and reduced other foods that tend to constipate.  To stay on top of things, I take fiber s…[Read more]

I am a participant in the HEALEY Platform Trial: Regimen D (Pridopidine), which I enrolled in early July.  Of course, it’s hard to know if I am on placebo or active drug, but I’ve been experiencing some symptoms that may well be side effects of active drug.  Side effects have included some nausea, lightheadedness, and extreme dry mouth.  There is…[Read more]

I am definitely up for the vaccine ASAP.  I have been unable to get any reliable information as to whether ALS patients will have high priority for receiving the vaccine.  Is there any good information out there?  Thanks all.