Gideon

Hi

My name is Gideon ,and I caregiver for My wife with ALS

Anger : Ever hour
Grief: every day
Fear: every Moment
Searching/Meaning  : all over the world try to find any want to answer
Guilt: Do I do good enough,
Anxiety: Every day dealing with the health insurance to provide my wife with right care

Which they didn’t have any knowledge about…[Read more]

totally agree

This is Same as my wife

you can buy it on TheSocialMedwork

She taking all this supplements for 4 years
just this year ALS symptoms getting more aggressive.

https://thesocialmedwork.com/ketas-ibudilast ask your Dr for Prescription

Dear John
Searchlight cover you until 65 years ,afther 65 thy don’t cover you
Searchlight drop my wife when she reach 65(Please see the contract from Searchlight)P.S thy send us a letter notified us my wife determinate at 65 when she legible for Medicare

Dear Marianne
Thank you for your information, Home infusion company don’t budge. We have a advantage plan with part D, Home infusion copay is about 20% off $14000.00 for each infusion, This is a broken system, same medication in EU is only 570 Euro, I try to get someone to administrate ,but I can’t find anyone todo it.
We need to fight to…[Read more]

Dear Robert
I wife taking Baclofen.4x a day, Gabapentin (300mgx3)three time a day, CBN+THC+CBD ( CBN 150mg, CBD 150mg, THC 150mg)Help with pain & neurological.

My wife taking 500mg Tudca 2x a day, B complex, alpha lipoic acid, THC 50mg 2x day, Taurine 1000mg, NAC 600mg, Riluzole 150mg Radicava and more.
This year my wife ALS turn aggressive afther slow progression for 4 years.
My wife losing her voice, and can’t walk or stand any more. losing her memory.
I praying for all of you.

Here’s a resource: Brand: Headmaster

My wife taking Gabapentin 300mg x3 three  time a day for about two years.

I try to reduce Gabapentin by 1/3, The consequence was my wife hands start shaking ,

went back to original dose.

P S if you taking pill for depressing ,  Do not taking it with Gabapentin

The COVID-19 mutated 1000 time .the new virus from UK is 70% more contagious , and today the new COVID-19 from Africa  is above 70% contagious. currently AstraZeneca and Pfizer conducting a new test with the current vaccine.

A new data show people with allergy symptoms should be more cautious to the vaccine.

From 200 million doses in 165…[Read more]

Dear Wane

Taking Baclofen don’t make you lose muscle strength.

My wife taking it every four hour ,+ 900mg of Gabapeatin 3x a day .

Side effects of baclofen :

<b>Drowsiness</b>, <b>dizziness</b>, <b>weakness</b>, <b>tiredness</b>, <b>headache</b>, trouble sleeping, <b>nausea</b>, increased urination, or &…[Read more]

My wife on  trilogy noninvasive ventilator and Oxygen most of the time especially at night .She constantly tearing from her eyes . She been using Restasis for years . Does anybody have the same problem? Please let me know.

For me is just watching my wife  decline every day is a struggle and  anxiety, looking at my wife beautiful face put on wife makeup just to help her to look beautiful , Is heartbreaking, and feel so helpless.And grandson who never been able to  known her.  Wake up every two hours to monitor her oxygen and ventilator. On  top of all fight with the…[Read more]