Gideon

https://clinicaltrials.gov/ct2/show/study/NCT04245709 The trial was ended on March 10
Second Trial NO 3rd Trial

Dear Kim
Why are you taking a drug Clenbuteral cost weight loss is illegal in US do to HAZARDOUS health effects
When you have ALS your goal to gain weight! The fat tissue in the body protects your muscle
Did you decide to take it on your own?

We stop going to ALS clinic. My wife and I used to go to ALS clinic,

We find out the the clinic uses my wife as a experimental for NP001, he the Dr refused to prescribe Radiciva for my wife, his opinion is not going to work  for ALS , I  do believe the the main reason is because he was funded by the pharmaceutical company he work for the trial o…[Read more]

Dear David

When my wife first diagnosed with Parkinson  on 2016.I try look for long term insurance, unfortunately I was denied. On 2017 we ask for  a second opinion and unfortunately my wife diagnosed with ALS,  still in I did not believe it we had a dream together, and our dream just lost in the fog,

Unfortunately the health system in this co…[Read more]

My wife’s have extremely hot and cold  feeling  all over her body ,we went to our  neurology, ALS clinic ,and no one know  the answer.

I am caregiver for my wife for over 5 years.

Yesterday was the first time that I had a nervous breakdown , the only thought I had is to end this situation by ending my own life, I am not sleeping as a human being ( 3 Hours a day maybe) Not getting help from her Brothers at all not monetary help or mental help, They never said or ask can we help …[Read more]

Totally agree with you  my wife taking it 3 time a day

Hi

My name is Gideon ,and I caregiver for My wife with ALS

Anger : Ever hour
Grief: every day
Fear: every Moment
Searching/Meaning  : all over the world try to find any want to answer
Guilt: Do I do good enough,
Anxiety: Every day dealing with the health insurance to provide my wife with right care

Which they didn’t have any knowledge about…[Read more]

totally agree

This is Same as my wife

you can buy it on TheSocialMedwork

She taking all this supplements for 4 years
just this year ALS symptoms getting more aggressive.

https://thesocialmedwork.com/ketas-ibudilast ask your Dr for Prescription

Dear John
Searchlight cover you until 65 years ,afther 65 thy don’t cover you
Searchlight drop my wife when she reach 65(Please see the contract from Searchlight)P.S thy send us a letter notified us my wife determinate at 65 when she legible for Medicare

Dear Marianne
Thank you for your information, Home infusion company don’t budge. We have a advantage plan with part D, Home infusion copay is about 20% off $14000.00 for each infusion, This is a broken system, same medication in EU is only 570 Euro, I try to get someone to administrate ,but I can’t find anyone todo it.
We need to fight to…[Read more]

Dear Robert
I wife taking Baclofen.4x a day, Gabapentin (300mgx3)three time a day, CBN+THC+CBD ( CBN 150mg, CBD 150mg, THC 150mg)Help with pain & neurological.

My wife taking 500mg Tudca 2x a day, B complex, alpha lipoic acid, THC 50mg 2x day, Taurine 1000mg, NAC 600mg, Riluzole 150mg Radicava and more.
This year my wife ALS turn aggressive afther slow progression for 4 years.
My wife losing her voice, and can’t walk or stand any more. losing her memory.
I praying for all of you.

Here’s a resource: Brand: Headmaster