@gideon
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Gideon replied to the topic Using immunosuppressant drugs to halt / slow down ALS progression in the forum Research Topics 4 months, 2 weeks ago
totally agree
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Gideon replied to the topic Can anyone give advice in the forum Diagnosis Information and General Questions 5 months, 3 weeks ago
This is Same as my wife
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Gideon replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis Information and General Questions 9 months, 2 weeks ago
you can buy it on TheSocialMedwork
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Gideon replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis Information and General Questions 9 months, 2 weeks ago
She taking all this supplements for 4 years
just this year ALS symptoms getting more aggressive. -
Gideon replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 10 months ago
https://thesocialmedwork.com/ketas-ibudilast ask your Dr for Prescription
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Gideon posted a new activity comment 11 months, 3 weeks ago
Dear Julie
Thank you for your information, I am getting help from
Health well Foundation ,For infusion in clinic.
but the problem is Part D Through
(Kelsey Car Advantage)
I ask four company who do Home Infusion, All using part D
for the own Pharmacy,( all in Tx), The total charge
$14000.00 and I have to pay a 30% copay.
$4200.00 for every…[Read more] -
Gideon replied to the topic Advice needed on Medicare covering radicava home infusions in the forum Living With ALS 11 months, 3 weeks ago
Dear John
Searchlight cover you until 65 years ,afther 65 thy don’t cover you
Searchlight drop my wife when she reach 65(Please see the contract from Searchlight)P.S thy send us a letter notified us my wife determinate at 65 when she legible for Medicare -
Gideon replied to the topic Advice needed on Medicare covering radicava home infusions in the forum Living With ALS 1 year ago
Dear Marianne
Thank you for your information, Home infusion company don’t budge. We have a advantage plan with part D, Home infusion copay is about 20% off $14000.00 for each infusion, This is a broken system, same medication in EU is only 570 Euro, I try to get someone to administrate ,but I can’t find anyone todo it.
We need to fight to…[Read more] -
Gideon replied to the topic Pain management and ALS in the forum A Forum for ALS Caregivers 1 year ago
Dear Robert
I wife taking Baclofen.4x a day, Gabapentin (300mgx3)three time a day, CBN+THC+CBD ( CBN 150mg, CBD 150mg, THC 150mg)Help with pain & neurological. -
Gideon replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis Information and General Questions 1 year ago
My wife taking 500mg Tudca 2x a day, B complex, alpha lipoic acid, THC 50mg 2x day, Taurine 1000mg, NAC 600mg, Riluzole 150mg Radicava and more.
This year my wife ALS turn aggressive afther slow progression for 4 years.
My wife losing her voice, and can’t walk or stand any more. losing her memory.
I praying for all of you. -
Gideon replied to the topic Neck drop in the forum A Forum for ALS Caregivers 1 year, 2 months ago
Here’s a resource: Brand: Headmaster
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Gideon posted an update 1 year, 3 months ago
My wife in last couple months having very hot ( red face) or very cold feeling( , She put the fan on and off al day and night
I like to know if somebody have the same symptoms
Gideon -
Gideon replied to the topic Gabapentin, good or bad for ALS? in the forum Living With ALS 1 year, 3 months ago
My wife taking Gabapentin 300mg x3 three time a day for about two years.
I try to reduce Gabapentin by 1/3, The consequence was my wife hands start shaking ,
went back to original dose.
P S if you taking pill for depressing , Do not taking it with Gabapentin
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Gideon replied to the topic Vaccine on the horizon in the forum Coronavirus (COVID-19) and ALS 1 year, 6 months ago
The COVID-19 mutated 1000 time .the new virus from UK is 70% more contagious , and today the new COVID-19 from Africa is above 70% contagious. currently AstraZeneca and Pfizer conducting a new test with the current vaccine.
A new data show people with allergy symptoms should be more cautious to the vaccine.
From 200 million doses in 165…[Read more]
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Gideon replied to the topic Leg jerks in the forum Living With ALS 1 year, 6 months ago
Dear Wane
Taking Baclofen don’t make you lose muscle strength.
My wife taking it every four hour ,+ 900mg of Gabapeatin 3x a day .
Side effects of baclofen :
<b>Drowsiness</b>, <b>dizziness</b>, <b>weakness</b>, <b>tiredness</b>, <b>headache</b>, trouble sleeping, <b>nausea</b>, increased urination, or &…[Read more]
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Kathryn F. Kennedy and
Gideon are now friends 1 year, 9 months ago
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Amanda and
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Gideon replied to the topic Respiratory onset? in the forum Diagnosis Information and General Questions 1 year, 10 months ago
My wife on trilogy noninvasive ventilator and Oxygen most of the time especially at night .She constantly tearing from her eyes . She been using Restasis for years . Does anybody have the same problem? Please let me know.
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Gideon replied to the topic What is the hardest thing being a Caregiver? in the forum A Forum for ALS Caregivers 1 year, 10 months ago
For me is just watching my wife decline every day is a struggle and anxiety, looking at my wife beautiful face put on wife makeup just to help her to look beautiful , Is heartbreaking, and feel so helpless.And grandson who never been able to known her. Wake up every two hours to monitor her oxygen and ventilator. On top of all fight with the…[Read more]
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Gideon posted an update 1 year, 10 months ago
My wife use to get Pressure Point Massage Therapy & Acupuncture after visiting Apple Clinic in Houston methodist hospital Dr Stanley Appel Neurologist and ALS specialist and ALS research , advice us not to do it. just do simple exercises he said .
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This is interesting, Gideon. Was your wife getting these therapies in order to relieve pain? Or for something else?
Why don’t you add this comment to the topic we have on Massage Therapy & Acupuncture? Here is the link: https://alsnewstoday.com/forums/forums/topic/massage-therapy-acupuncture-have-they-helped-your-als/
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