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@gmtmisty
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Gail Theile replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 1 month, 1 week ago
My brother has had ALS for 3 years and I SO looked forward to the approval of Relyvrio which seemed to take forever. Also, the pill form of Radicava was great…….I read about many people using these and I wonder how they afford it….both are cost prohibitive for my brother…I’ve read that the annual cost for Relyvrio is anywhere from $150k to $…[Read more]
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Gail Theile became a registered member 2 months ago
Hello Gail,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
Hello Gail,
Just a quick check-in to see how things are going for you here in the forum.
I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010. Amanda and I have been moderators of this forum for several years – – so, feel free to let us know if you’re having any problems posting a topic or, locating a t…[Read more]