ALS News Today Forums | GregC | Activity https://alsnewstoday.com/forums/members/gregc/activity/ Activity feed for GregC. Sun, 05 Apr 2026 07:17:06 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 58d8dcd17bc3e1484582c7c00a3ee5aa GregC replied to the discussion Do you attend an ALS support group? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-attend-an-als-support-group/#post-25611 Tue, 11 Jun 2024 19:59:21 -0500 Reply to Do you attend an ALS support group?

I belong to an ALS group that is an invaluable resource for me. We meet 2 hours once a month on Zoom. Most of our members are located in our metropolitan area. There are about 15 people in our group and about 10 show up on a given meeting. We get to know each other, talk about our families and our lives. It is a friend’s group where all…

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]]> 2f8a86b43c68e37b4ce0db7f8de1635f GregC replied to the discussion Radicava and side effects in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/radicava-and-side-effects/#post-25307 Thu, 07 Mar 2024 22:03:17 -0600 Reply to Radicava and side effects

I experienced balance and walking issues with Radacava. The literature that comes with the Radacava says that 10-15% of patients who take the medicine experience gait and balance problems. I use a power chair when I am out of the house but in my home I use a rollater. I quit taking Radacava after I experienced three falls in the house. …

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]]> cc1697347e35a11d2cdbdc89cd7e74e8 GregC posted a new activity comment https://alsnewstoday.com/forums/activity/p/21663/#acomment-21678 Wed, 17 Jan 2024 19:47:03 -0600 Thank you. Hope to contribute in the future GregC

In reply to - GregC became a registered member ]]> 1d53bb9d7da06a526aa3ba5a5b597b3c GregC became a registered member https://alsnewstoday.com/forums/activity/p/21663/ Wed, 17 Jan 2024 14:27:06 -0600 3