ALS News Today Forums | Harry-50 | Activity https://alsnewstoday.com/forums/members/harry-50/activity/ Activity feed for Harry-50. Tue, 07 Apr 2026 10:55:46 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 bb622b4fe1cec595fe682e094be1bedf Harry-50 replied to the discussion What is your mutation? in the forum Familial ALS https://alsnewstoday.com/forums/forums/topic/what-is-your-mutation/#post-26930 Thu, 01 Jan 2026 22:32:18 -0600 Reply to What is your mutation?

Terri, my older brother has ALS too… no where else in family

]]> b686bfdc45eea5d788bf5b005e3a83b0 Harry-50 replied to the discussion What is your mutation? in the forum Familial ALS https://alsnewstoday.com/forums/forums/topic/what-is-your-mutation/#post-26921 Thu, 25 Dec 2025 20:08:34 -0600 Reply to What is your mutation?

I have c9orf72 expansion and ALS-FTD diagnosed

]]> 144294737e5cd1c2edc0b49b71488dd2 Harry-50 replied to the discussion Do you have Familial ALS? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-have-familial-als/#post-26441 Thu, 01 May 2025 20:01:38 -0500 Reply to Do you have Familial ALS?

My brother and I both have pathogenic c9orf72 expansion. He is limb onset I’m bulbar/respiratory with limbs more UMN with minor LMN relatively speaking.

]]> 97415e09d1dcd397c8db8d8514eec91f Harry-50 became a registered member https://alsnewstoday.com/forums/activity/p/25176/ Fri, 25 Apr 2025 14:59:49 -0500 1