I visit my ALS clinic in Toronto annually. That is a 2 hour plus drive for me and why I go only once a year. A second visit is done virtually. I’m by nature a problem solver and many years of doing Yoga mean I am able to ‘listen to what my body needs’. So often in my interaction with the doctors there, I simply get confirmation that what I…

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Thank you once more Len, you are an excellent wordsmith. I have always delighted in language well used, that comes from introspection and with sensitivity – wish I could do as well. Like you, speech is becoming increasingly difficult for me, and I resort to the written word – email for correspondence with friends, and a journal for my… Read more

Beautiful, sad, and hopeful all at once – thank you so much for sharing your thoughts.

Just read the three comments above, and appreciate the sentiments expressed. My extensive garden was my pride and joy – having moved to accommodate my mobility issues, now the garden is tiny and my sister (and caregiver) does the digging. I used to enjoy book club discussions, but my speech has deteriorated to the point that all discussion is… Read more

I know what you mean and how you are feeling about this. I have PLS, not in a wheelchair yet, but my mobility and speech are severely affected. I also have a close friend with MS, totally bound to her wheelchair and unable to use her hands.We agree that disability comes with a cloak of invisibility – few people are able , it seems, to accept… Read more