ALS News Today Forums | Hondo | Activity https://alsnewstoday.com/forums/members/hondo/activity/ Activity feed for Hondo. Fri, 03 Apr 2026 21:11:26 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 9d11cb182d8af90049ebe04f46f40e70 Hondo replied to the discussion Having your partner as a caregiver in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/having-your-partner-as-a-caregiver/#post-26984 Thu, 29 Jan 2026 20:27:47 -0600 Reply to Having your partner as a caregiver

I have an issue that I’m wondering if anyone is or has experienced. I’m 68 and been living with slow processing ALS for a couple year. Only lower body affected.

My caregiver is my wife who essentially volunteered by default. She doesn’t want any strangers in the house Now the kicker, she is a text book narcissist with me as target. She can…

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]]> 67f74362d7b4bc881e2604ea0b9b0457 Hondo posted a new activity comment https://alsnewstoday.com/forums/activity/p/26468/#acomment-26480 Mon, 26 Jan 2026 20:37:36 -0600 Thank you Dagmar for the welcome and my thanks to both you and Amanda for taking on the much needed as well as extremely helpful moderators position.

In reply to - Hondo became a registered member ]]> e10e88e816135446f61fe86c2e04faee Hondo replied to the discussion Do you ever feel “survivor’s guilt” about being a slow progressor? in the forum People with slow ALS progression https://alsnewstoday.com/forums/forums/topic/do-you-ever-feel-survivors-guilt-about-being-a-slow-progressor/#post-26977 Mon, 26 Jan 2026 19:55:48 -0600 Reply to Do you ever feel “survivor’s guilt” about being a slow progressor?

I also have been told I have slow progressing ALS. Initial symptoms start 1/2023 as loss of both feet coordination . Initially diagnosed a Gillian Burre Syndrome. Did the week of IVIC treatments. Nothing. Next diagnosis was a couple of lower discs pinching on nerves. Diagnosis confirmed by outside second opinions. Had back fusion surgery in…

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]]> 544ddc782755eeb645024192675b8d4f Hondo became a registered member https://alsnewstoday.com/forums/activity/p/26468/ Fri, 23 Jan 2026 14:50:07 -0600 4