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Jim replied to the topic Does fungus cause ALS! in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
During my ALS diagnosis which consisted of two EMG’s, two MRI’s and a blood test for diabetes, the neurologist never mentioned a blood test for pathogens, the doctor did state you probably have Lou Gehrig’s Disease, which there is no known cause, no cure and only limited treatment options. Wanted to know if anybody got tested by blood/urine/lumbar…[Read more]
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Jim replied to the topic Does fungus cause ALS! in the forum Diagnosis Information and General Questions 4 weeks, 1 day ago
Added thoughts, football/soccer players have higher rates of ALS: close contact with mycotoxins in soil fields. Higher levels of ALS with military personnel: biological/fungal weapons were used in Iraq. As far as living far from a waterway and still getting ALS, whole colonies of bacteria/fungi can travel within air currents. Again I’m not…[Read more]
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Jim started the topic Does fungus cause ALS! in the forum Diagnosis Information and General Questions 1 month ago
Hope everyone is well, I know personally how challenging ALS can be! Wanted to leave you a link regarding mycotoxins, within the link there will be 4 sublinks in black. Best to start the earliest sublink and move toward to the most recent article. This topic has been brought up before and mycotoxins/fungus need to be taken serious as a probable…[Read more]
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Jim replied to the topic Are you Involved with ALS Advocacy? in the forum ALS Awareness and Advocacy 1 year, 7 months ago
Hi,
Without advocacy nothing would get done, Congress would do nothing, fund nothing, without pALS and their families involvement. Advocacy is essential for progress! Ask yourself, Is there enough funding for ALS research? Are there enough people involved in advocacy and awareness? Do you see any commercials on tv about ALS? Are businesses with…[Read more]
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Jim replied to the topic June 21 – Global ay of recognition of ALS/MNd in the forum ALS Awareness and Advocacy 1 year, 9 months ago
Hi Richard, Thank you for your knowledge and insight regarding Global ALS day on the 21st and your Awarness! How important it is to stay active with global ALS groups sharing treatment options/research, awareness and support! I’ve already reached out to the ALS Global Alliance, about contacting a couple government health departments in major…[Read more]
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Jim replied to the topic ALS – Take Action Website in the forum ALS Awareness and Advocacy 1 year, 9 months ago
*Jean Rouzic you are a valuable asset here and the words you text about open many doors!
*Dying-back axonopathy, Wallerian Degeneration and Compartmentalized Microfluidic Devices.
“Axonal regeneration and sprouting as a potential therapeutic target for nervous system disorders Marshall KL, Farah MH – Neural Regen Res”…[Read more]
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Jim replied to the topic ALS – Take Action Website in the forum ALS Awareness and Advocacy 1 year, 9 months ago
Hi Everyone, Just completed a few important forms online at below link. Just filled in my name, so quick! “Iamals” really already did all the hard work! I took action on the ‘Promising Pathway Act and ‘AcceleratIng Access for Critical Therapies for ALS. The website is really Fantastic, well organized and very easy to navigate through! Take a look!…[Read more]
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Jim replied to the topic ALS – Take Action Website in the forum ALS Awareness and Advocacy 1 year, 9 months ago
Hi everyone, Wanted to tell you I had a childhood friend in Florida, even though we lost touch with one another, I still heard about his wife passing away a few years ago. I looked her name up on the internet. She passed away from ALS. Her obituary overall says “She was a wonderful mother to three small children and she put up a noble fight, her…[Read more]
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Jim replied to the topic MLB finally to honor Lou Gehrig. in the forum ALS Awareness Month 1 year, 10 months ago
Will Lou Gehrig Day inspire people to donate and garner awarness, surely hope so! Will hearing that he was the Luckiest man alive spark understanding, empathy or compassion, hope so. Will seeing pictures of a man who lived decades ago still bring out emotion in people enough to make a change for ALS. I certainly hope so!
Do think people should…[Read more]
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Jim replied to the topic MLB finally to honor Lou Gehrig. in the forum ALS Awareness Month 1 year, 10 months ago
Lou Gehrig Day Singer!
NJ Musician Living With ALS Set to Sing at Yankee Stadium for Lou Gehrig’s Day
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Jim started the topic Global ALS Day! in the forum ALS In The Media 1 year, 10 months ago
Global ALS Day June 21st! Did you know? Global ALS Day in June!
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Jim replied to the topic ALS Awareness Month – NOT Reaching Major News Oranizations in the forum ALS Awareness Month 1 year, 10 months ago
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Jim replied to the topic ALS Association Announces Goal of Making ALS Livable by 2030 in the forum Research Topics 1 year, 10 months ago
Lou Gehrig passed away in 1941. His wife Eleanor passed away in 1984. Do you think they would be impressed that 80 years later, No known causes, No effective treatments and No cure! After 80 years!
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Jim replied to the topic Another theory! Causes of ALS in the forum ALS News 1 year, 10 months ago
Thank You Jean Rolzic! Hopefully I got that correct, JP Julien..
Upregulation of INQLN2/Ubiquilin-2 are linked to pathology, mutants can form cytoplasmic aggregates. This Upregulation contributes to pathogenesis through NF-kappaB activation by p38 MAPK signaling.. Another words Inflammation. -
Jim replied to the topic Another theory! Causes of ALS in the forum ALS News 1 year, 10 months ago
May have to ‘Plea The Filth Amendment” right to remain silent rather than incriminate oneself! with that one Theory, but just passing on other people’s research/theories!
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Jim replied to the topic Another theory! Causes of ALS in the forum ALS News 1 year, 10 months ago
Parkinson’s disease drug for ALS, Dopamine Agonist. Looks again promising! or another false claim.. Ropinirole/Requip
“Parkinson’s disease drug proves effective against ALS in Japan research using iPS cells – The Mainichi” https://mainichi.jp/english/articles/20210521/p2a/00m/0sc/046000c
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Jim replied to the topic Parkinson's Disease Drug Proves Effective against ALS in Japan Research in the forum Research Topics 1 year, 10 months ago
Just posted an article on Requip, see topic on Requip has already been discussed, Hopefully won’t be posted twice! All the Best
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Jim replied to the topic ALS Awareness Month – NOT Reaching Major News Oranizations in the forum ALS Awareness Month 1 year, 10 months ago
Hi, Certainly trying to spread the word out to non-pals. Lots of automatic responses, wrote from a Governor to the National News and working my way up from Florida toward New York with local tv news stations. Wrote between 40-50 emails, that’s a start! Got a wonderful, thoughtful reply from a reporter in Kentucky, but he thought I was personally…[Read more]
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Jim replied to the topic ALS Awareness Month – NOT Reaching Major News Oranizations in the forum ALS Awareness Month 1 year, 10 months ago
Hi, Don’t think we are pushing anyone to get more involved in different ways, we are simply ‘Asking for more help to get the word out in areas which haven’t gotten any or not enough coverage!
It’s difficult to expect pALS to do this alone as so many of us die within a few years or less after diagnosis. Actually, as we know intial diagnoses takes…[Read more]
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Jim replied to the topic ALS Awareness Month – NOT Reaching Major News Oranizations in the forum ALS Awareness Month 1 year, 10 months ago
Agree Richard, Can we get Bionews to help spread the news about ALS further? Into National News and other Media sources to non pALS. There is so much which needs to be done! Bionews definitely has the partnerships and resources!
- “Advocacy – BioNews” https://bionews.com/advocacy/
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