Base

Name

Jane Johnson Murray

Nickname

jane-johnson-murray

Year of Birth

1949

Gender

Female

Location

Houston, TX

Relationship

Patient

Short Bio

I realized two years ago I had ALS but did not get definitive diagnosis until August 2021.

So far I have “man in a barrel syndrome”which started in my shoulders and has reached my fingers. I am taking both Radicava (oral) and Relyvrio.

 

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

2 years

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