ALS News Today Forums | John | Activity https://alsnewstoday.com/forums/members/jflesch82/activity/ Activity feed for John. Sun, 19 Apr 2026 05:29:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 ecb53abe3c8ae6775965a316cac863b0 John replied to the discussion I feel my Dr. is hiding the truth in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/i-feel-my-dr-is-hiding-the-truth/#post-16986 Fri, 04 Dec 2020 00:20:29 -0600 Reply to I feel my Dr. is hiding the truth

Hi Lisa,

I have not been diagnosed yet but I am certain that I have ALS. Everything else has been ruled out so I am simply waiting to find the right doc at the right time to diagnose me. Good luck on your journey.

-John-

]]> a0fa9bceba533300f7713b3b0bfb6c9d John replied to the discussion I feel my Dr. is hiding the truth in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/i-feel-my-dr-is-hiding-the-truth/#post-16982 Thu, 03 Dec 2020 23:04:45 -0600 Reply to I feel my Dr. is hiding the truth

Hi Lisa,

I am sorry about what you have been going through. Reading your post really hits home for me. I have had progressive weakness, twitching, pain, tingling and tightness all over since May 2019. I have literally had 100’s of tubes of blood tested, 5 EMGs, a muscle biopsy, spinal tap, a dozen MRIs and CT scans, etc. I have also seen about… Read more

]]> ad4101d83b2bf392ffa70ec6a764f0ba John replied to the discussion How long did it take for an ALS diagnoses? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/how-long-did-it-take-for-an-als-diagnoses/#post-15891 Thu, 16 Jul 2020 21:44:19 -0500 Reply to How long did it take for an ALS diagnoses?

I have seen neurologists at NYU and Columbia in addition to several local neurologists here in NJ. They all said no ALS. One said possible fibromyalgia. One said possible small fiber neuropathy. One said possible unspecified autoimmune disease. Several guesses but nothing concrete. Awaiting a spinal tap to gather more info. I’m losing hope day by day.

]]> f24b246bb2d29d25edd205b4d49d25ec John replied to the discussion How long did it take for an ALS diagnoses? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/how-long-did-it-take-for-an-als-diagnoses/#post-15888 Thu, 16 Jul 2020 20:51:09 -0500 Reply to How long did it take for an ALS diagnoses?

To add to my previous post: my muscle weakness and twitching are now widespread throughout my entire body. I also have muscle cramping, tightness and pain. I have worsening jaw and neck pain which feels like nerve pain. Recently, I have experienced neuropathic itch when I get moments of bad nerve pain in my arms, hands, legs, feet, face, etc.… Read more

]]> 5e24af43b6ca5c2d60465af156879fea John replied to the discussion How long did it take for an ALS diagnoses? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/how-long-did-it-take-for-an-als-diagnoses/#post-15886 Thu, 16 Jul 2020 20:46:36 -0500 Reply to How long did it take for an ALS diagnoses?

Good afternoon all,

In May 2019, I began experiencing tingling in my left arm, hand and some on the left side of my face/head. In June 2019, I developed an intermittent left eyelid twitch. In July 2019, I started having weakness and tightness in the back of my legs. In August 2019, I developed random twitching (fasciculations) along… Read more

]]> be824ee7fa4d6b9e32a85b0182d9d912 John became a registered member https://alsnewstoday.com/forums/activity/p/6399/ Wed, 24 Jun 2020 15:59:45 -0500 2