@jholgan
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John replied to the topic Volunteering to participate in ALS research: what are your pros and cons? in the forum Research Topics 3 months, 1 week ago
I was diagnosed in May 2021. I have been volunteering in the A02 Oral Radicava study since January 2022. My upcoming visit will be my last visit for the study.
I am of the same mind that research is my contribution to assisting the clinics and medical staff to finding a solid treatment and/or a possible cure. I’ve been poked and prodded, MRI’s fro…[Read more] -
John posted a new activity comment 8 months, 1 week ago
Thank you.
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John replied to the topic What do you think of this new form of Radicava? in the forum Research Topics 8 months, 2 weeks ago
I don’t know if I am fortunate or unfortunate when it comes to radicava treatment. I was diagnosed this past May with ALS.
I say unfortunate because my insurance company would not approve me for the in-vane radicava treatment requiring additional information regarding my diagnosis thereby delaying treatment for seven months. So, I was not…[Read more]
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John posted a new activity comment 8 months, 2 weeks ago
Thank you.
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John became a registered member 8 months, 2 weeks ago
Hello John,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Thank you.
Hello John,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
Thank you.